NorCID

Consultant Neurologists:

Dr Rachel Kneen, Clinical Lead and Consultant Neurologist (AHCH)
Dr Anil Israni, Consultant Neurologist (AHCH)
Dr Siobhan West, Consultant Neurologist (RMCH)
Dr Dipak Ram, Consultant Neurologist (RMCH)
Dr Robert Forsyth, Consultant Neurologist (NuTH)
Dr Ines Ronchero, Consultant Neurologist (NuTH)

As above plus:

Clinical Nurse Specialists:

Gillian Jones, Clinical Nurse Specialist (AHCH)
Tania Bukhat, Clinical Nurse Specialist (RMCH)

Business Support:

Yvette Edwards, Network Manger (RMCH)
Helen Cibinda, Service Manager (AHCH)
Laura Gallagher, Network Co-ordinator (AHCH)

Core membership for monthly NorCID MDT meetings are as follows:

  • 1 x Consultant Paediatric Neurologists with expertise in Paediatric MS and Demyelinating Disorders
  • 1 x Consultant Neuroradiologist
  • 1 x Clinical Psychologist
  • 1 x MS Clinical Nurse Specialist

Other membership for monthly NorCID MDT meetings are as follows:

  • Network Co-ordinator
  • The referring Consultant Paediatrician
  • Neurorehabilitation Consultant
  • Occupational Therapy
  • Physiotherapy
  • Opthalmologist
  • Pharmacists
  • Adult Neurologist

The Northern Children’s Inflammatory Disease Service (NorCID) is a newly formed Clinical Network between three Tertiary Hospitals (Alder Hey, Royal Manchester and Newcastle).

This service is accessible to all patients who are under the age of 18 with a Demyelinating Disorder where any of the listed conditions are established or being considered:-

  • Multiple Sclerosis
  • Demyelinating Disorders including Optic Neuritis (ON), Myelin Oligodendrocyte Glycoprotein (MOG), Acute Transverse Myelitis (ATM), Acute Disseminated Encephalomyelitis (ADEM), Antibody Mediated Demyelination including aquaporin-4 (AQP4), Antibody Positive Neuromyelitis Optica (APNMO) and other NMO Spectrum Disorders (NMOSD)

The NorCID Network provides multi-disciplinary team (MDT) decision-making by teams experienced in the treatment of MS and Demyelinating Disorders in children, led by a team of Consultant Paediatric Neurologists and supported by Clinical Nurse Specialists and a Network Coordinator.

The MDT members meet monthly to undertake assessments and reviews, including decisions on initiating treatment and undertaking ongoing surveillance of patients.

The NorCID Network is also part of the United Kingdom Children’s Inflammatory Disease (UKCID) Network and all hubs work together to ensure that children all over the country are receiving the most appropriate care and treatment.

All incidents will be reported by individual trusts as per their local Governance policies. Incidents in relation to NorCID will be reported and discussed at the Business meetings on a quarterly basis.

Any incidents over Level 4 will be discussed at the next available Business meeting.

Raise the profile of the service by:

  • Hosting a grand round
  • Organising study days/regional roadshows
  • Linking with MS Trust to share information on their website

Improve patient care by:

  • Developing a Business plan for dedicated Psychologists
  • Create a new transition document to improve the patients journey
  • Develop new drug pathways
  • See the patients journey through their eyes by taking part in The Sweeney Programme (Coordinator shadow clinics and produce patient surveys)

AHCH: https://alderhey.nhs.uk/

RMCH: https://mft.nhs.uk/rmch/

NuTH: http://www.newcastle-hospitals.org.uk/services/childrens.aspx

Young minds: https://youngminds.org.uk/blog/where-to-look-for-support-while-youre-on-the-camhs-waiting-list/

Kooth: https://www.kooth.com/

MS Trust: https://www.mstrust.org.uk/